Goals & strategies for managing CLN2 disease

Multidisciplinary care for this rapidly progressing paediatric neurodegenerative disorder.

Join us JANUARY 22 for a no-cost, live, educational webinar exploring expert recommended strategies for managing neuronal ceroid lipofuscinosis type 2 (CLN2) disease, one of the most common forms of NCL.


The Details

Webinar 1

January 22, 2019

11:00-12:00 GMT / 6:00-7:00am EST

Broadcast in English.

Webinar 2

January 22, 2019

17:00-18:00 GMT / 12:00-1:00pm EST

Broadcast in English and Spanish.
Available live translations to English, Spanish and Portugese.

The Agenda
Welcome & Introductions 5 minutes
CLN2 Disease Natural History 10 minutes
Multidisciplinary Approach 5 minutes
CLN2 Disease Management Strategies 25 minutes
Future Perspectives 5 minutes
Interactive Q&A Session 10 minutes

Our Faculty

Angela Schulz, MD, PhD University Medical Center

Hamburg, Germany
Nicola Specchio, MD, PhD Bambino Gesù Children’s
Hospital, IRCCS,

Rome, Italy
Norberto Guelbert, MD, PhD Children’s Hospital
of Cordoba,

Cordoba, Argentina
This program is developed for healthcare professionals interested in learning about how to manage patients living with CLN2 disease.
No CME credit will be offered for this webinar.

About This Event

We welcome our expert international faculty who will discuss the CLN2 disease-specific management strategies, that can greatly impact patient outcomes.

You will learn about how goals and interventions evolve as the disease progresses from maintaining function early in the disease, to maintaining quality of life later in the disease.

You will also learn about the roles of the multidisciplinary care team in the implementation of key management goals and strategies in clinical practice to improve patient outcomes.